An Invitation to: A Day in the Life of a Longhauler

Question Title

What this project is about?
Despite 3.5 million Canadians experiencing Long COVID symptoms, there continues to be a lack of acknowledgment and awareness of Long COVID.

This project invites longhaulers from across Canada to share photos of their daily life with the public to:

Make this illness visible
Reduce stigma and shame
Advocate for improved support

Who is supporting this project?
We’re an interdisciplinary team, including a patient and community advocate, social justice, and health researchers at Simon Fraser University (SFU).

This project emerged from a series of conversations with Long COVID patients, carers, and healthcare workers, who identified the need for greater awareness and education of Long COVID. To read more about us and our work, you can check out our articles in The Conversation Canada:
'People with long COVID continue to experience medical gaslighting more than 3 years into the pandemic '

'Making visible the invisible: Supporting long COVID patients and the people caring for them'

Now, we are inviting you to join us in this mission.

Who should participate in this project?
Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection (NASEM Definition of Long COVID), we want to hear from you.

Where will these photos be exhibited?
A pilot of this project was launched at a Long COVID public event with Pulitzer-prize winning science journalist Ed Yong as part of SFU's President’s Dream Colloquium in One Health on April 4, 2024.

We are now working towards a public exhibition at the Museum of Vancouver set to launch in the Fall of 2025.

To learn more, click on OK, then next.