Children's CAR T-Cell Therapy Journey

Dear Parent,

Thank you for your interest in our research project! Our aim is to understand the experience of children and youth with relapsed or refractory B-cell acute lymphoblastic leukemia (B-ALL) undergoing CAR T-cell therapy to better support children and youth receiving such therapy in the future.

As part of our research process, we would like to make sure your child meets the requirements to take part in our study. It ensures that participating children share common characteristics relevant to our research focus.

Please be assured that the information provided in response to the following questions will not be used for research purposes and will remain confidential.

Should your child meet the eligibility criteria for participation in our study, you will receive an email from our research team containing detailed information about the study procedures and a consent form.

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* 1. What email address can we use to contact you?

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* 2. What is the date of birth of your child/youth?

Date of birth

Date

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* 3. Has your child/youth received, or are they scheduled to receive CAR T-cell therapy as part of treatment for their acute B-cell lymphoblastic leukemia (B-ALL)?

Yes

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* 4. Independently on where your child has received or will receive their CAR T-cell therapy, in which hospital is their primary follow-up ? (Please specify the province or territory)

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* 5. Does your child speak French or English?

Yes

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* 6. Do you believe your child is is able to participate in a 30-minute virtual interview (video conference via Microsoft TEAMS) with a researcher?

Yes

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* 7. Through which association did you hear about our survey?

Thank you,
If you have any questions about the study or would like more information, please contact:
Valérie Audet-Rochon, RN, B.Sc. Nursing, M.Sc.Nursing (Candidate)
vaude035@uottawa.ca