Study Information

Who is doing the survey: 
  • Dr. Susan Tupper, PT, PhD, Manager, Professional Practice Pain Strategy and Research, Saskatchewan Health Authority, (306) 715-8315, susan.tupper@usask.ca
  • Teagan Holt, College of Medicine, Second year student, tjh419@mail.usask.ca
  • Elise Kammerer, PhD, MPH, Knowledge Mobilization and Implementation Specialist, Department of Pediatrics, University of Alberta, (780) 492-1852, ekammere@ualberta.ca 
Why we’re doing the survey:
  • We are collecting feedback on the Pediatric Chronic Pain Primary Care Pathway (from now on called ‘the pathway’) from young people who live with pain, their caregivers (e.g. parents), healthcare providers, and people who make decisions about healthcare services. 
  • The pathway provides links to assessment tools, treatments, and education resources. We hope this will make it easier for young people, caregivers, and healthcare providers to talk about options for chronic pain management.  
What you will do for the survey:
  • The pathway is linked to the survey. The first 2 pages have links to assessment tools and information about treatments. The third page is a questionnaire that a person living with pain can use to talk to their healthcare providers about what’s important to them for their pain management.
  • The survey questions will take you about 10 minutes to complete. There are 5 questions about who you are (e.g. your age, gender) that will help us know who took part in the survey, 11 questions asking your opinion about the pathway, and 7 extra questions for Healthcare providers and health services decision makers about use of the pathway in their practice.
Potential risks and benefits of taking part:
  • There are no risks expected from taking part. We hope your feedback will help us improve the pathway so that it is helpful for people living with pain and their healthcare providers. 
Compensation:
  • No payment or gifts are offered for taking part in the survey. You can choose to enter a draw for one of five, $20 gift cards, after completing the survey. Your contact information for the draw will not be linked to your survey answers. The draw for the gift card will take place on September 15th, 2022. Winners will be contacted by email. If the winner does not reply in 1 month, another participant will be chosen.
Your Privacy:
  • We do not collect any identifying information in the survey, so your answers will be anonymous. Your answers will be grouped with answers from other people and only shared in group form.  
Storage of Survey Answers:
  • Survey answers are stored for 5 years on a password-protected computer in a locked office at the Saskatchewan Health Authority. After this, all copies of the survey answers will be deleted beyond recovery.  
Right to withdraw from taking part:
  • You can refuse to answer any question. While the survey is open you can change any of your answers. You can stop taking part at any time by closing the survey. 
  • If you finish any questions but then decide remove them, type the word “WITHDRAW” in any of the comment boxes and we will remove all of your answers. Otherwise, answers you provide up to the point that you close the survey will be kept. You do not have to give a reason for withdrawing. 
How you can find out about the survey results:
  • Results of the survey will be summarized and distributed through the Solutions for Kids in Pain (SKIP) and Saskatchewan Pain Society.
Contact Dr. Susan Tupper (susan.tupper@usask.ca; 306-715-8315) for any questions. The project was reviewed by the University of Saskatchewan Behavioral Research Ethics Board and received exemption.

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* 1. Thank you for taking part in our survey on the Pediatric Chronic Pain Primary Care Pathway (from now on, called the ‘pathway’). Here is the link to the pathway document for Saskatchewan residents "Pediatric chronic pain pathway-Saskatchewan". Here is the link to the pathway for those living outside of Saskatchewan "Pediatric chronic pain pathway-National". Take as much time as you like to read through the tool and visit the links. Some links will not work because they go to health services that are not available in your area. Different documents will be made for different provinces and regions. When you answer the questions, imagine those inactive links go to health services available to you in your area. When you are ready, please answer the questions below.

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* 2. These questions tell us a bit about you: 

What is your age in years?

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* 3. If you are less than 16 years of age, do you have consent from a legal guardian to do this survey?

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* 4. What is your gender?

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* 5. In what province or territory do you live?

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* 6. Are you a (select all that apply):

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* 7. These questions tell us what you think about the pathway: 
Link to the Saskatchewan Pathway Document: Pediatric chronic pain pathway-Saskatchewan
Link to the National Pathway Document: Pediatric chronic pain pathway-National

How would you describe the amount of information on the pathway?

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* 8. If you chose “Too much” or “Not enough”, please describe

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* 9. How would you describe the clarity of the information on the pathway?

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* 10. If you chose “Somewhat clear” or “Not very clear”, please describe.

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* 11. Overall, how useful do you think the pathway is for healthcare providers, youth, or their caregivers to make decisions about chronic pain management?

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* 12. If you chose “Somewhat useful” or “Not useful”, please describe.

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* 13. How would you describe the organization of the pathway?

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* 14. If you chose “Somewhat organized” or “Not well organized”, please describe.

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* 15. What do you like most about the pathway content or format?

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* 16. What changes should be made to the content or format of the pathway?

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* 17. Please use the space below for any additional feedback or comments on the pathway.

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* 18. If you are a healthcare provider or health services decision maker, answer the next 7 questions. Otherwise, indicate if you want to enter the draw for a chance to win one of five $20 gift cards.

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* 19. Implementation questions – exploration stage (questions for healthcare providers or health services decision makers):

Rank the following 3 options for the pathway formats, where 1 is your top preference and 3 is your lowest preference.

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* 20. Please describe any other formats that you would prefer.

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* 21. How ready are you (if you are a healthcare provider) or people in your organization (if you are a decision maker) to begin using the pathway in your practice in one of the following formats: pdf with links, website with direct links, EMR template?

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* 22. If you chose “somewhat ready” or “not at all ready”, please describe.

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* 23. Do you currently use something similar to this pathway in your practice or care setting to guide pain management?

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* 24. If you stated Yes to the question above, please describe.

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* 25. What other training, tools, or resources would be helpful for you or others in your practice setting to use the pathway?

If you would like your name entered for a chance to win one of five, $20 giftcards, enter the draw here
Thank you for taking part in the survey!

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